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If you would like to reach out to Rare Find Foundation to share your story, organise a fundraising event or any other reason, please get in touch.
You can also reach our team by filling out the the contact form below.
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Request a copy of our guide
Tay-Sachs and Sandhoff Diseases: a practical guide for families and carers
Receiving a diagnosis of Tay-Sachs or Sandhoff diseases in your child or loved one may be one of your most challenging experiences. Rare Find Foundation has developed a free information guide with the hope that it provides you with information, support and reassurance throughout your journey.
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